Petals

276d

Anyone else never find the cause of their b12 deficiency? I found out I wasn't absorbing it in 2019. I got injections and my levels recovered a little but it remained low end. The only investigating my doctor did was refer me to endocrinology. They scoped me and said "you don't have Celiac, sooo idk! It's a mystery 🤷‍♀️"
But like... That doesn't sit right with me. I would like to address the root cause of the b12 not absorbing, if possible. Or is it more common to just never know??

Cyanocobalamin

B12 Deficiency Anemia

Diffuse connective tissue disease

Gastroparesis

View all
  • SJP

    276d

    I have Non-Celiac Gluten Sensitivity, which causes malabsorption for me. I have hypovitaminosis D, calcium, and b vitamins. I also don't absorb them well. I take folate to help, and vitamins.

  • Sam85

    274d

    I have gastroparesis and I don't really absorb many of my needed vitamins. I'm constantly on high doses of d, all the B's, and magnesium. Sometimes we add c or iron as well. I just stay deficient.

  • QueenBlueBead68

    244d

    My endo ran a blood test that showed mine was an autoimmune disorder, not celiac and told me to take mega doses of B12 daily in pill form. I have 2 other autoimmune disorders so if I get a major illness like the flu, covid, etc, I'm at risk to pick up another one.

  • AutumnCoffee

    9d

    I've just finished being tested for all (most) causes and yep I don't have a root cause either. I'm now on monthly B12 injections to be checked if my levels go up but we don't know why they're so low in the first place

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.