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Connecting with Others with Essential Thrombocythemia

Namvet

759d

I am a 73 year old Vietnam veteran,was in the US Air Force Security Service stationed in Danang RVN 1970/1971. I was exposed to Agent Orange, during my tour of duty.During a pre-op blood test in 2007,I was diagnosed with Essential Thrombocythemia.....Was put on a regimen of Hydroxyurea and will be on it for the rest of my life.I hope to connect with other people with this extremely rare, incurable,but manageable blood cancer......

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Essential Thrombocytosis

Hydroxycarbamide

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    • lawrah

      629d

      @Namvet I have them both too!

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    • Essent

      644d

      I’m a 62 year old lab tech diagnosed with ET, JAK2 mutation . Started hydroxyurea and liver enzymes skyrocketed . Read the side effects and it said liver failure and all other things it can cause! Anybody change from hydroxyurea to interferon?

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    • Olyvica

      693d

      Btw, do you think because your exposure to the agent orange you could be develop this blood disorder?

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    • Olyvica

      693d

      Hi Namvet, I just found this app. Nice to meet you virtually. I was diagnosed with ET on January 2019 after a regular blood lab. Then more blood labs were made and I had the result of the Jack2 positive too. My platelets had been under control since I’m taking hidroxyurea for 2 years now. I’m 43 years old

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    • Namvet

      759d

      Along with my diagnosis I have a related Gene mutation (jak2 positive)

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      Reply
      • lawrah

        629d

        @Namvet I have them both too!

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        Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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