Looking for Advice on Stopping Lupus Damage

I first got Lyme in 2001 was treated with 6 weeks of doxy. I got a second 2nd separate case of Lyme a year later and treated again. Since then I have added a new dx of some kind. Fibro was early on 2001 actually the last most devastating has been RA. I def agree that Lyme hides out in cells and comes out when your weakest. It never leaves you. Now with this Covid and Omicron era it is a really dangerous time for the Chronic Illness Community.

I got Lyme disease in 2015 and didn’t know for a week. After I was finally treated with a round of antibiotics I was fine for a bit. And then 6 months later, in winter, I began having seizures, extreme body pains and incredible mental fog. Along with other sporadic symptoms like lung problems and heart issues. I was getting any help from the doctors I saw, and ended up finding a doctor 2-3 years later that was an allergy specialist interested in chronic Lyme. He ran a bunch of blood tests and saw I also had a mycoplasma infection in my lungs. And together they cause neurological problems. I am still suffering from my seizures, but I found out there was also a genetic basis for that. From my experiences Lyme sorta changes you forever - switches different genetic switches on. I was treated with something called LDI, or low dose immunotherapy, and it was one of the only things that helped with my body pain. SNRIs like cymbalta helped me for a period of time, too. Though symptoms still pop up all the time for me. They say Lyme hides in your cell walls to camouflage itself from your immune system, and then comes out and attacks when you’re weakest. It is shaped like a spiral, or a tornado, the symbol of spontaneous activity/a type of chaos. And though it’s been tough, I think it’s kind beautiful :/

It can be very scary when body is attacking itself. Mine was attacking the myelin lining in my brain and I jad 12 lesions. 1 was half foliar size. My functional nurse/nutrionist taught me to work on gut, add good prebotic and proboitc, healthy fats, vitamin d, stem cell activation were some that have been very helpful on my journey. I have been symptom free med free 4 years now. And all the myelin lining is restored. No leisons. Don't loose hope it can get better Body can be taught and do amazing things.