Starting a Podcast on Disability Advocacy

hey everyone:) i’m starting a podcast with my friend who is also disabled and chronically ill which im super excited about. i know we obviously can’t speak for everyone in the community, and i would love to hear input from other people in similar situations about things you wish able bodied people knew, your experiences in healthcare, discrimination, or anything else relevant. feel free to message me privately if you aren’t comfortable posting a comment. wishing you all a low pain, manageable symptom day💚

Your answer

MissLucy_101719

1y ago

I wish able bodied people know that the pain I experience on a daily basis is likely more than they will experience in their lifetime. That I miss my old self, pre chronic illness/disability more than anything in the world. That giving me unsolicited advice when you know nothing about me or my illnesses isn't helpful. And lastly, I don't think able bodied people realize how isolating and lonely chronic illness and disability is.

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