Seeking Advice on Managing POTS Symptoms

Hi there! A neurologist would definitely help because POTS is a form of Dysautonomia which is technically a neurological condition. Basically our nervous system is malfunctioning and therefore tell our heart to do certain things. I think having a neurology would def help. Also there's different types of POTS, including hyper pots. It may be good to find out which type you have to better narrow the search of treatment options.

I went to a cardiologist who diagnosed me and helped me to understand what I have. Also a tip that helps me a lot is to make sure to eat something small and drink water every 3 hours, it keeps my blood pressure stable

• A cardiologist or/and neurologist. Those would be a good starting place. It’s really hard to find good doctors that treat your invisible illness as visible and serious. But they are out there, it’s just a matter of trial and error. Which is exhausting, but if this doctor causes you so much concern, then it’s probably not a good fit. You are your own advocate, your voice matters in this. • You deserve to feel comforted, not concerned, about the treatment and care. You can ask your doctor for suggestions of other specialists. That helped me some and online resources can provide easier ways to guide you. It’s such a crazy process, but I’ve walked through this, and certainly know you can too. Sending you love from a fellow potsie. ❤️

If your lucky enough to find a cardiologist that understands POTS that can be a goldmine.

I have a physical therapist. Surprisingly this one gave me a good exercise regimen that is already helping me build more tolerance. I also have hypermobility syndrome so they also have given me plenty of muscle building exercises to help with that. If you wish to look up what the exercsie regimen is its called the “Levine protocol” id discuss it with one of your doctors if you’re interested.

I think a neurologist might be helpful if you aren’t seeing one already, same for a cardiologist. The most important thing is that you work with drs that actually listen and want to help, if they either can’t or won’t find one who will.