Looking for Others with Occipital Lobe Epilepsy

Hi, I have temporal lobe epilepsy that has lots of activity at the point of the occipital lobe.

The they’ve been EEG correlated so at the minor ones I need to start my safety plan.

i have epilepsy, they can’t find anything wrong with my brain though.

I know exactly how you feel

If you've had an EEG, sometimes the stickers are only placed on the top of the head and not the bottom. My first EEG was when I was 7 and they only placed them on the top, but that's not where my epilepsy is located, mine is on the very back on my head/brain. So, when they finally found it, I was 15 and had been told I was faking it since I was 2. Know your truth and push to make others see it too

Hi! I have TLE and experience some minor hallucinations from time to time as well. I was VERY recently diagnosed but I’ve had the majority of my symptoms as long as I can remember.

I have temporal lobe epilepsy and it took 11 years, 2 brain surgeries, and trying almost every med in the book before my seizures were under control. It's a nightmare of a disease and you're always welcome to message me. I'm a pretty open book

I have epilepsy, idk which of the lobes is having the problems but I'm happy to talk at all if you want to